Little Jade is a special young lady with a sparkling personality and energy in abundance. Jade is only four-and-a-half years old, but she is no stranger to hospitals as she has spent most of her young life in and out of clinics and hospitals.
Jade was a happy and bouncy new-born baby and for the first year of her life she was hardly ever ill. For her mom, Anne, Jade seemed well and completely healthy up until the age of about one year when she suddenly developed a high fever that she couldn’t shake. It was then that Jade first visited the Red Cross Children’s Hospital, a place which would later become a second home to her and Anne.
During one of her first visits to the Hospital in 2013, the doctors discovered that she suffered from recurrent chronic pancreatitis, a progressive inflammatory disease which also caused her to develop a pancreatic pseudocyst, which is a build-up of fluid around the pancreas. This condition caused Jade a lot of pain and she was constantly struggling with abdominal pain, especially when her bowel duct raptured in 2014.
Jade was admitted to the hospital and received daily treatment in the hope that her condition would improve, but her journey to restore her health was not yet complete. “She was here at the hospital for more or less four months and when she was cleared we were only able to have her home for a week before she had to come back again.”
After numerous treatments Jade’s condition improved slightly and she was able to go home. However, following a recent MRI scan, the doctors diagnosed little Jade with tuberous sclerosis, a rare genetic condition which causes non-cancerous tumours to appear on various organs. For Anne, this news came as a complete shock and although Jade fortunately has not developed any tumours, she has been battling with a few growths on her face and brain as a result of the tuberous sclerosis. “I don’t know when and if the tumours will start, but it is still very scary.”
Although Anne fears for her child’s future at times, she is hopeful that Jade will recover and live a long and happy life. “She is in good hands here at Red Cross and even though every day is a challenge, we are taking it one day at a time.” “The nurses and doctors are so awesome here and they all know her so well by now.”
Brave Jade has not let her difficult journey affect her spirit and she has stayed the same bubbly and energetic little girl who lights up everyone’s day at the Red Cross Children’s Hospital. We wish you a speedy recovery Jade!