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PATIENT STORIES

Meet Mussadiq

St Josephs for Chronically Ill Children officially started their children’s rehabilitation programme in October 2013. The programme focuses on disabled children, children who have been diagnosed with a life limiting illness or have been in a life changing accident. The service is provided for children who come from impoverished communities.

Six months after the start of the programme, 39 children are now able to live more comfortably and some are even able to walk and run. This would not have been possible without this programme. 

Mussadiq’s life changed when he was admitted to the  Red Cross War Memorial Children’s Hospital due to a sudden onset of weakness affecting his ability to walk in September 2013. He complained about sore legs, exhaustion, had a persistent cough and his breathing was laboured.

Following a series of tests and a lumbar puncture they discovered that his lower lobe lung had collapsed. A tracheostomy was performed and he was placed on supportive ventilation. He spent one month in the Paediatric Intensive Care Unit (PICU) and a further two months in the general wards. 

Mussadiq was then referred to the Rehabilitation Programme at St Josephs for Chronically Ill Children in January this year as a day patient.  The team at St Joseph’s completed a screening assessment of his functional abilities and at the time found that Mussadiq was dependent on a wheelchair for his mobility; he was unable to sit on his own and needed help with his self- care. Time was spent with his mother to explain how the rehabilitation service works and how the family can get involved in supporting and caring for Mussadiq.  

This young man undergoes daily therapy in the form of physiotherapy, occupational therapy and speech therapy. His family are involved in the sessions so that they are able to continue the therapy at home. The programme has also helped him improve his learning at school. 

In just three months Mussadiq has made excellent progress. He is now able to walk to school, jump on a trampoline, kick a ball, feed independently and his handwriting has improved.   The St. Joseph’s rehabilitation programme has contributed to accelerating his healing so that Mussadiq is now able to enjoy a healthy and normal childhood. 

Fortunately he also has a very supportive family who participate in his healing process and encourage him to reach his full functional abilities again. 

For more information on the St Joseph’s fundraising project click here

 

 

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