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PATIENT STORIES

Meet Sinaye

Seven-year-old Sinaye has been in and out of the Red Cross War Memorial Children’s Hospital for a very long time. Doctor’s discovered that he has Biliary Atresia disease not long after his birth and this condition affects the liver and the bile ducts in infants. For treatment of this disease, Sinaye underwent a Kasai procedure when he was only three months old to prevent him from suffering severe liver damage.

As a result of this disease, little Sinaye has had many health complications and he has not been a well child for all of his life. One of the symptoms of this disease is that his tummy is permanently swollen and this is something that he has often been teased about at school.

According to his doctor, Sinaye needed to receive a liver transplant in order to help and improve his quality of life, but sadly the doctors could not place him on the transplant list originally due to his family’s personal circumstances. Khaliswa did whatever she could to get a stable, permanent job as a high school teacher and managed to provide a home that is suitable for a sick, recovering child. It was 14 January 2016 when Khaliswa received a call from the hospital to say that her little boy will be receiving a liver transplant. They were both overjoyed.

Sinaye was immediately brought to the Red Cross Children’s Hospital and his liver transplant was successful. This brave little boy stayed in the Paediatric Intensive Care Unit (ICU) at the Hospital for about a week after the procedure to ensure that he was stable. According to Khaliswa, she was not always able to be by his side, because of her work commitments, but nevertheless, she was at ease, because she knew her boy was receiving the best possible care. “These are all really good doctors and I know my child was in good hands,” says Khaliswa. “Even when I was not there I knew he had a doctor or nurse by his side the entire time, I saw how each individual patient there really received special care and always had his or her doctor close by.”

Sinaye is still in the hospital but has been moved to the renal ward where he is receiving daily care and medication to ensure his condition is stable. “Sinaye is in good spirit and he is a really, really strong boy who is also a fighter,” says Khaliswa.

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